Meet our iCAN Parent Council
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Parents and Guardians of any child of all ages that want to support the youth voice.
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Families (siblings, cousins, aunts, uncles, and grandparents) of any child of all ages that want to support the youth voice.
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Committed to the iCAN Mission.
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Creating and participating in opportunities to support pediatric healthcare excellence.
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Engaged throughout their local community, nationally, and globally.
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Seeking support through project participation, speaking experience, networking, and educational opportunities.
Projects, Opportunities, Resources
For Parents & Families
Have a project, opportunity, or resource you would like to share? Email us at info@icanresearch.org
Making Informed and Shared Decisions About Genetic Testing and Clinical Trial Participation
Global Genes
"In this toolkit, you’ll learn how to consider what’s right for you—and how to apply shared decision-making skills to the choices you make related to genetic testing and gene therapy clinical trials."
Provided by Global Genes.
The Road Map Project
American Board of Pediatrics (ABP)
The American Board of Pediatrics (ABP) is working with patients, parents, and the Learning Networks Program of the Anderson Center for Health Systems Excellence to increase awareness for patients, families, clinicians, and provide ways to help.
The Roadmap Project is a national effort that aims to support the resilience, emotional, and mental health of pediatric patients with chronic conditions and their families.
Click below to learn more about the Road Map Project featuring iCAN's Director, Amy Ohmer.
Financial Advocacy in Rare Diseases: Landscape Assessment
Global Genes
"The purpose of this landscape assessment is to support the development and maintenance of a sustainable, grassroots initiative focused on addressing financial advocacy and the impact on psychosocial well-being and quality of life for patients with rare diseases."
Provided by Global Genes.
Is My Doctor Board Certified?
American Board of Medical Specialities (ABMS)
The American Board of Medical Specialties (ABMS) is the recognized leader in developing and setting the gold standard for physician specialty certification in the U.S. The 24 ABMS Member Boards that offer board certification in 40 specialties and 88 subspecialties adhere to rigorous training and assessment standards.
Board certification is a significant achievement that not all doctors attain. Board certified doctors:
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Skilled and knowledgeable
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Experts in their specialty
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Meeting a higher standard
