iCAN Member and Community Research
Posters & Papers
2022: Susan McCune, FAAP, Ronald J. Portman, MD, FAAP,FASN,FASH
The culture of research communication in neonatal intensive care units: key stakeholder perspectives
2021 Authors Include: Jennifer Degl, Ronald Ariagno, Judy Aschner, Sandra Beauman, Wakako Eklund, Elissa Faro, Hiroko Iwami, Yamile Jackson, Carole Kenner, Ivone Kim, Agnes Klein, Mary Short, Keira Sorrells, Mark A. Turner, Robert Ward, Scott Winiecki, Christina Bucci-Rechtweg, International Neonatal Consortium
2022 Authors Include: J. Preston, B. Nafria, A. Ohmer, S. Gaillard, P. Dicks,
L. West, M.A. Turner
Talking to Teens About Clinical Research: The Development of Educational Brochures By and For Youth
2022 Elisa Koppelman, MSW, MPH, Walker Morrell, MBE, Ava Glazier, Amanda Shih, Barbara E. Bierer, MD. on behalf of the MRCT Center Pediatrics Project Working Group.
Engaging Youth Throughout Product Development: Why, When, Who, and How
2022 Elisa Koppelman, MSW, MPH, Barbara E. Bierer, MD. on behalf of the MRCT Center Pediatrics Project Working Group.
2021 Authors include, Tsang, Vivian W. L. MD, MGC*; Fletcher, Sarah*; Jassemi, Sara MD, FRCPC†; Smith, Sharon MD, FAAP
2021 Authors include, Tsang, Vivian W. L. MD, MGC*; Fletcher, Sarah*; Jassemi, Sara MD, FRCPC†; Smith, Sharon MD, FAAP
2019 iCAN Authors include, Tsang, Vivian W.L., Chew, Siaw Yee, Koh, Sara, Fletcher, Sarah, Goddard, Grant, ElSayegh, Lydia, Stones, Simon, Ainsworth, Sophie, Ohmer, Reece, Woods, Hampton, Haygood, Jake, Ohmer, Olivia, Junker, Anne K., Faculty of Medicine, University of British Columbia, Vancouver, BC Canada British Columbia Children’s Hospital, Vancouver, BC Canada
3International Children’s Advisory Network (iCAN)
2019 iCAN Authors Vivian L.S. Tang, Leanne West, MS, Christine Woods, BS, Chester J Koh, MD, Susan McCune, MD, Theresa Mullin, PhD, Sharon R. Smith, MD, Segolene Gaillard, MS, Joana Claverol, MS, Begonya Nafria, MS, Jennifer Preston, PhD, Pamela Dicks, PhD, Charles Thompson, MD, FCAP share insight to the Role of Patients and Parents in Pediatric Drug Development.
Authors Meghan Gwara, BS, Sharon Smith, MD, Christine Woods, BS, Elizabeth Sheeren and Hampton Woods share how iCAN Research is formed as a pediatric collaborative for support within pediatric clinical trials, patient advocacy, innovation, research, science and support within the global pediatric healthcare community.
Jenny Preston, GEN R, and expert team, release exciting and informative research paper.
Overview: To understand stakeholder's views regarding the content and design of pediatric clinical trial multimedia websites.
Setting: One UK Children's Hospital and One Young Persons' Advisory Group (YPAG).
Presented at the Southeastern Pediatric Research Conference, 2018
and
the American Academy of Pediatrics Section on Advances in Therapeutics and Technology (SOATT), 2018
iCAN, FCAAP, and Florida Residency Programs Join Forces to Advocate for Kids
Presented at the American Academy of Pediatrics Family Partnership Network Meeting, 2018
41 iCAN Youth Members contributed to the project during the 2017 iCAN Summit
Authors: Peter D. Murray, Barbara E. Bierer, Steven Hirschfeld, Andreas K. Klein and Jonathan M. Davis
Presented at the DIA, 2015
Authors: Hadleigh Thompson1, Nicholas Frederico, BS1, Sharon R. Smith, MD2, Manil Chowdhury, BA3, Pamela Dicks, PhD4, Jennifer Preston, PhD5, and Charles Thompson, MD6